The Gift of Truth: Having Difficult ConversationsBy Seasons | July 01, 2021
Difficult conversations are a normal part of almost any 12-hour shift when working in critical care or other acute hospital setting.
No professional expects every conversation with patients or families concerning code status, quality of life, intubations, and tracheostomies to be straightforward or easy to facilitate. However, discussing pragmatic options with patients and loved ones and helping them arrive at their personal definition of quality of life is a gift of truth we owe to our patients.
5 Tips for Successful Honest Conversations
It can be difficult to guide a family towards a realistic understanding of their prognosis. Here are 5 tips to make it easier on the patient, family, and you:
- Put your phone, laptop, and charts down. Leave them at the door or out at the nursing station. Be present.
- Your long white coat or professional garb can be intimidating, especially if you are standing over a patient on their worst day. Pull up a chair and hold their hand if you can. Ask them personal questions about their life and see them as more than their diagnosis. Be real.
- Give control back to your patient. Remind them that they get to make their own decisions, and that you are on their side and will advocate for them. Sometimes, the biggest battle they are fighting is getting their loved ones to accept their prognosis and respect their wishes.
- Speak with the family separately from the patient at some point, and vice versa if possible. Family responses might put an unnecessary burden on your patient that will cause them to make a decision based on what their loved ones want, rather than their own wishes. You can help the family understand this.
- Tell them the truth. If you believe that all of the tests, procedures, and treatments are futile and only putting off the inevitable - tell them gently but directly.
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Kelly’s Story: Hard Truths
Kelly was in her early 40’s. She had breast cancer that had metastasized throughout her body. She was in and out of the ICU and the step-down unit for almost two years. The first time she graduated from ICU to step-down the family was so excited, especially after proving all of the naysayers wrong. Kelly was a fighter! Her mom insisted she was going to make it out of the hospital. As anyone who has worked in intensive care might suspect, three short days after that graduation out of the ICU, the page came over the intercom: “CPR team STAT with intubation,” the call came from Kelly’s room. She came back to the ICU, and the disappointment and fear was evident her family’s eyes. This cycle repeated in various ways for the last two years of Kelly’s life.
During Kelly’s fight, her husband mentioned several times that he wanted to put her in hospice. He had approached each nurse asking questions about her options. Kelly’s mom, however, pushed her daughter to keep fighting. Her encouragement came from a place of love but cast a pallor over the family. The word “cancer,” was not allowed to be spoken in the room, and Kelly’s mom was making all of the decisions for Kelly and her husband. Telling the inevitable truth of Kelly’s prognosis seemed futile to the physicians, so they kept suggesting courses of treatment that left Kelly fighting an endless, futile battle. Kelly was torn between wanting peace and comfort and not wanting to disappoint her mother.
Kelly desperately needed a professional advocate.
She needed someone to say to her mother that her daughter was not going to recover. Someone to say, “We can turn off the alarms, get rid of all of the bells and whistles, wires, tubes and needles, and provide peace.” The following day, after similar conversations with ICU nurses, a physician sat down in a conference room with Kelly’s mother and husband. He told them Kelly would never leave the hospital, that everything the team was doing at that point was just to prolong the inevitable. He explained that without a change, Kelly would suffer until that happened. He was candid and kind and spoke honestly to Kelly’s mother and husband.
The family met and agreed that Kelly would love to have her best friends and closest family members with her, and that she really needed to see her dogs. She was a dog lover and her two huge, loving huskies that she missed terribly hadn’t been able to see her while in the hospital.
Ultimately, Kelly died a peaceful death surrounded by those she loved most, but her very long and futile fight in the ICU could have been made much easier. Her ‘truth’ came very late. Had she been given the gift of truth and the opportunity to go home with comfort care, she could have experienced her remaining time at home with her family and huskies.
The Role of Hospice and Palliative Care
Hospice specialists are experts at explaining the concept of shifting to comfort care rather than curative treatment. The hospice team can provide literature patients can read at their leisure, and resources and phone numbers for them to call and ask questions. Ordering a hospice consult early in the process can diffuse potentially difficult situations. Decisions about hospice are easier to make if the groundwork is laid earlier than a moment of crisis.
Ultimately, no practitioner likes giving bad news to a patient or their family. But these conversations can save those in our charge endless exhaustion and help them avoid complex grief and guilt. The gift of truth is one of the most sacred ways we can honor and support our patients.